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Showing posts from September, 2015

The Big Step into the Land of Education

The Lodger has started his journey into the land of education!

Unfortunately due to cut backs, The Lodger was unable to receive an assistant. We were very fortunate to find a preschool that would take him to see how he would get on. The first day of school was the most nerve wrecking day and not just for me. The Lodgers support network were all equally nervous as he took the big step into education.

 I reluctantly dropped him over to preschool, helped him hang up his jacket and put his lunch bag away. I helped him walk to the table, sat him on the chair, fought back the tears and told him to have a great day.

Before leaving, I emphasised to the teachers, that I was 5 minutes away, to ring me at any stage and then I left.

I got home and spent the next 2 hours 45 minutes anxiously waiting for a call. I won't lie... I didn't clean the house. I didn't read a book. I didn't watch tv. I didn't do anything. I just sat on the couch, nervously waiting, checking to make sure my …

The Lunch Bag

The Lodger started preschool in the last few weeks. We found a preschool that have accepted him without a preschool assistant, a battle we continue to fight, trident in hand we fight on.
Anyway all he needed was a thermos lunch bag. So simple and yet these were the thoughts going through my head a few days before he set off.

I discuss with the Lodger where we should shop for his lunch bag and because it's a Wednesday and because it's just after lunch he's in a YES mood so my decisions are all agreeable.
This is a good day.

We arrive in the shop and I survey the options. He loves Frozen but I don't so I veto that. He understands. Daddies know best. He loves monsters too but it's all monsters crossed with lunches, so monsters eating and I'm not sure about how Pradar-Willi friendly that is. Then there's the happy strawberry bag with the lovely strawberry zips but I wonder if I buy that one will his teachers believe how serious PWS is if we're so casual about …

Champagne Moments

The Lodger has had a summer filled of Champagne Moments. (Thank you fellow PWS Mum for this phrase!)


This time last year, The Lodger started to weight bear. Since then, there has been daily physiotherapy and the motivation of Walter and the rest of The Muppets, the use of clever strategies to increase his confidence in using his legs rather than crawling, weekly hydrotherapy to improve his strength, the removal and relocation of furniture to encourage him to take an extra step and a lot of praise and encouragement from us and family and friends to motivate him to walk an extra few steps everyday. 


We were over the moon, thrilled to bits when The Lodger took his first solo steps in June  and with a lot of practice all summer, he can now walk independently! We have the Ikea blue chair to thank, as it acted like a walker he could push around the house. It scratched the floors but each scratch is a step taken, a reminder of the tremendous amount of work it has taken The Lodger to reach this…