99% of people greet The Lodger like he's just any other kid- smile, joke, play etc., but then there's that 1%. The 1% of people I dread to see. The pity brigade! "O isn't his life going to be tough!" "O well that's your life over!" "Challenging times ahead for both you of." The list goes on.... The first time this happened, I smiled and tried to say something but no words came out! I walked away fast! I then felt guilty and sad as I should've stood up for my son. Now I'm prepared. I've my reply.. Yes I'm sure there'll be some challenges, like with any child but there'll also be lots of joyous celebrations! If anything he's thought me so much about life so far,. Yes it's heartbreaking. My heart will be forever broken as I know my son will face challenges the rest of us can't even imagine but in his short time already he has shown courage, bravery and determination far beyond what any adult could cope...
Our life with our son The Lodger, who just happens to have Prader-Willi Syndrome