The Lodger entered the latest phase of his war on PWS recently. The dreaded CPAP (continuous positive airway pressure) machine. A breathing mask that supplies a constant and steady air pressure into his airways through the night to counteract the sleep apno ea. Just at the same time he learnt his new favourite word...No. No No No No No No No No. Everything is No. Well not everything, dinner is becoming increasingly Yes but that's another story. But generally The Lodger loves using the word No. And we don't mind because it's all friendly family banter. If we followed his replies we'd never go anywhere, we'd never come home from where we didn't go, he'd never sleep, never play, never sit, never stand, never do anything. Just No. In fact he can be very stubborn on the fact that he definitely doesn't want to do either of two very opposite things. But I haven't explained to him the error of his ways there yet. Sometimes he says No to the thing...
Our life with our son The Lodger, who just happens to have Prader-Willi Syndrome