Lodger, where are your legs? I don’t know. Where did Mummy leave them? I don’t know. Da. Yes Lodger. Why do you need them? To put them on you. Why? So we can go out. Why? Where are we going? To the shop. What shop? The fish shop. Why? To buy fish. Why are we buying fish? For lunch. I love fish. I love lunch. Where are my legs? Obviously not his actual legs. They are attached to him, luckily. Enough issues without removable legs. The Lodgers legs are his action boots , his plastic leg holders that help support his ankles while we wait for the muscles to grow. I’m wondering if they ever will. The Lodgers Action Boots Where’s the fish shop? Near the hotel. What hotel? The swimming hotel. (W here we have gone swimming ) Why? Because it is. Why? Look a bird. The art of ongoing distraction 101. Sometimes. Where? You missed him. Where? Over there. I don’t see him, Da. Da. I don’t see him. What bird? ...
Our life with our son The Lodger, who just happens to have Prader-Willi Syndrome