The Lodger was diagnosed with Prader-Willi Syndrome when he was just two weeks old and like the majority of other parents with children with PWS, it was something we knew very little about. We were warned to stay away from google, as a lot of the information is outdated but in a world that is reliant on the internet, we didn't last long. I read everything, the good and the bad. Luckily there are some fantastic PWS organisations around the world to get the right information from. We've had and continue to have great support from PWSAI in Ireland and very easily accessible information from other PWS associations in the UK, USA, New Zealand and Canada. PWS is rare, so the worldwide community makes up an important part of our lives now. Facebook groups are great for advice from parents worldwide. The Lodgers's interest in food is increasing. Other parents of non-PWS kids will often tell me their two year olds are the same but I don'...
Our life with our son The Lodger, who just happens to have Prader-Willi Syndrome