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Showing posts from January, 2015

The Selection Box

This morning I woke up in a panic. I had one of those dreams that seemed so very realistic that I thought it was happening right at that moment. The Lodger was given an empty selection box with the task of completing a treasure hunt to fill it up with all its chocolate goods! Somewhere in the dream was the Easter Bunny without the PWS memo!!  If someone had ever told me that one day a dream featuring a selection box would cause me so much stress, I would never have believed it.  We've chosen to not give the Lodger any typical food treats. There's no biscuits/ice-cream/cake/chocolate/crisps/sweets in our house for him.  Our thinking on this is that if he never has it, he'll never miss it.  The Lodger is only two and I know there will be many food challenges for him to face as he grows older but for now all we can do is be prepared and make the healthiest choices.  As I was growing up, birthdays were always filled with Mums Chocolate Cake. Every year she m...

I don't have Prader-Willi Syndrome

Sometimes its easy to forget that you do not have Prader-Willli Syndrome.   My son does but he's two. Yes I'm healthy, very healthy. In fact we rarely have bad food in the house. Frozen rubbish, processed ready meals never pass our  front door. Yet I still feel so guilty thinking about a bag of chips on the way home from a night out with the lads. Its stupid, its ridiculous.  My son wont know.  I'm not hurting him. I'm not causing him any harm. But still it always happens.  The guilt.  We often have to remind ourselves that we do not suffer from a potentially life threatening syndrome. That we are actually innocent in all of this. That we didn't cause this. Yet we punish ourselves. We subconsciously eat super healthy, we exercise regularly and we sneak a plain rice cake with a cup of tea late in the evening.  Prader willi syndrome is tough but I dont have it! Sometimes, as quite a food driven person pre PWS I forget this and forget to realise I...