Skip to main content

Pigs In Jackets

We walk out of the shop. I ask the Lodger for his hand but he refuses. I explain, as you do, the dangers of traffic and that he must hold Mummy or Daddy's hand when near the road.
He's frustrated and tries to explain to me what's wrong. But I just don't get it. 
Then the Mummy steps in to understand the problem. 
The Lodger explains using his range of words and signs that obviously he cannot hold Daddy's hand as he is carrying a pig.

Yes, a rather large invisible pig.

So the situation is resolved by Mummy taking the pig and the Lodger holds Daddy's hand and is happy. He keeps checking behind us as we walk and after some questioning I'm informed that he's just making sure the other pig is following.

Apparently we have 2 pigs.

We hop in the car, close the doors but Mummy has forgotten to let the pig in. The door is opened, the pig is let in, disaster averted. 
We're good to go, the Lodger and pigs on board.

Watching My Pet and Me (The Pigs episode!)

The Lodger loves animals. He has little interest in cartoons but would watch episode after episode of The Zoo. He's recently started watching My Pet and Me, a show in which we are introduced to children and their pets of all shapes and sizes and how they look after their pets.
In the absence of real life pets the Lodger has channelled his inner imagination and looks after many animals around the house.

His uncle on a recent visit was brought on a tour of our invisible pet farm, from the pigs sleeping under the piano to the cows who live under my bike (small cows).

Feeding the Invisible Stairs Monsters!

From early days during the Lodgers early intervention sessions with his home teacher we were always asked if we thought the Lodger used imaginative play. 

The reason for this is that children with PWS can show impaired pretend play abilities.
Imaginative play is important as it enhances the capacity for cognitive flexibility and therefore creativity. It is also another no pressure opportunity to learn social skills like communication, problem solving, and empathy.

So now we're off on a trip. The Lodger puts on his jacket and hat. He makes sure the pigs have their jackets on. We head for the door, me carrying 2 large invisible pigs in their jackets, the Lodger following. The Lodger hops into the car, makes space for the pigs and we're good to go. It doesn't actually take much longer to get the pigs ready so I don't mind too much.

I'm sure all parents have stories about there child's early imaginative lifestyle and most probably take it for granted. 
But to us this is another important step reached. 
It counts as another milestone the Lodger has achieved, no matter how invisible it is.

Playing Row, Row, Row The Boat! 


Popular posts from this blog

The Lodger on tour!

The Lodger recently had his first school tour. The week leading up to the much-anticpated school tour started with an unexplained bout of challenging behaviour. 
The Lodger went back to school after his midterm break on Monday. He didn’t have the best day, a bit tired, a little bit oppositional, but we put it down to back to school feelings (and I kept my fingers crossed that he wasn't getting sick!)
Tuesday continued in the same breath! I was perplexed as he was fine at home, his usual happy Lodger self! I had a chat with his teacher and SNA after school and no light was shared but we decided maybe it was school tour excitement?? 
That was until, Tuesday evening and myself and the lodger were  having a little chat about things using my “I’m not trying to find out anything but really I am” strategy.... and for some unknown reason, he had gotten it into his head that he wouldn’t be having snack or lunch on his school tour.
Alarm bells rang, Take a breath! You think you have all bases c…

This is Real

This is real.
This feeling. 
This comfort.
This feeling of being surrounded by like-minded people.
A warming safety feeling.
No stress.
No panic.
No fears.
The joys of the Prader Willi family weekend.

A time when you release your child to the elements, safe in the knowledge that if anything was to happen the Prader Willi Police (PWP) are everywhere. Watching. Like undercover agents hiding in the shadows. But not actually in the shadows. 

We are a fun crew. A happy crew. A proud crew. We look out for each other with a nod and a smile. A simple nod of 'I've got this, fear not'. It's lovely to embrace these moments. The Lodger loves these weekends. If excitement wasn't sometimes such a chore it may well be exciting. A time when he can meet all his like-minded friends and enjoy the freedom although he's being watched by so many knowledgeable eyes. 

Another dad once told me; "We, the parents are the experts of this syndrome". And those words have never left me. 

As I …

Easter Eve

It’s the night before Easter and all through the house, not a creature is stirring....
Oops wrong event! 
It’s Easter Eve and the Lodger has been busy over the last few days questioning all things Easter Bunny, most questions relating to whether the Easter Bunny knows about his special tummy.
'Mum have you told the Easter Bunny about my special tummy?' 'Mum, how did you tell him?' 'Mum, was it a letter? I didn't see you post it." 'Mum, what about you? You don't have a special tummy. Will you get a chocolate egg?' 'Mum, what is a chocolate egg?' 'Mum, I think the Easter Bunny DEFINITELY knows about my special tummy!' 'Mum, I think I really like Easter. Mum, the Easter Bunny will bring me special things." 'Mum, does he know I live here now and not in the old house.' 'Mum, what about our new house. Will he know where that is?' 'Mum, we don't live in the new house yet. Does the Easter bunny know?' 'Mum…