Skip to main content

The Chocolate Holiday

The Lodger is now very aware that people eat different things to him. At meal times he'll point out if we are having the same meal and mention any differences between them. He'll show off his counting skills too... 'one piece of bread', 'two tomatoes', 'three different foods on my plate'. 

He's also very aware that there are food types he can't eat. 

We've chosen to keep The Lodger on a healthy, balanced, nutritionally dense diet. After too many hours.. months, probably years stressing about different types of diets - low carb, high fat, high protein, ketogenic, the list goes on... We've settled on a nutritionally dense healthy diet for The Lodger.  Every few months we'll fill in a food diary to get it analysed by his dietitian to make sure he's getting everything he needs. There's probably not many people who use My Fitness Pal for their 4 year old but it's a very useful tool to plug in his meals and get immediate feedback on his calorie count and nutrition! #PWSlife

The Lodger is entering the phase of hyperphagia (uncontrollable hunger) where he can put on weight easily without any increase in calories, so we're extra vigilant about portion sizes. 
This also means daily exercise is now even more important for The Lodger. He's a big fan of Cosmic Kids Yoga. The Lodger showed off all his exercises to his Granny when she was minding him the other day. Much to her amusement he rolled out his yoga mat and did his full repertoire, ending with his yoga phrase "namaste".

Yoga Time - Namaste

Easter/The Chocolate Holiday is fast approaching (2 days to go!) and as always we've a Lodger friendly Easter planned. This year will be different though. The Lodger knows other people will be getting chocolate eggs. 

'What will I have? I have a special tummy!' is his latest phrase. 

The Lodger knows he has PWS. We are very open about it with him and with everyone. It definitely eases his anxiety that he has his own phrase for when he's offered chocolate/lollipop/icecream/food from people who don't know about his special tummy. 'No thanks, my mummy/daddy have my snack. I have a special tummy!' is his reply. 

I do worry about the future. I'm not sure how long the above phrase will be The Lodgers go to reply to someone offering him food. He's inquisitive. He loves food. And the drive to eat is strong. He swiped a tomato from the counter when lunch was being prepared. The Lodger was lightning fast but luckily Action Dad was that bit faster and the tomato was retrieved without casualty. 

The Lodger knows the Easter Bunny knows about PWS. This was very important to him. He had many many many questions about what the bunny might bring and does the bunny know about his special tummy. The Lodger is busy working on prewriting skills, learning his numbers and letters and practising sitting at a desk for a long time for school in September, so a good guess would be books/toys to help develop these skills ;)

The Lodger busy doing his 'homework'. Getting school ready!

The Lodger currently doesn't mind people having different food types to him, as long as he has his version. People who might not know him very well tend to throw out the sympathetic phrase 'Aw, no chocolate/sweets/icecream, the poor kid!' but The Lodger really doesn't mind. 

He'll wake up Easter morning, see his Easter Bunny gifts, have his breakfast (an actual egg!), do some yoga, do his Easter Hunt for non-food treats with his cousins and enjoy a big family Easter lunch and that evening will tell us all about the great day and delicious food. The Lodger will prove once again, that although food is important (5 times a day without fail), it is possible to make a weekend where chocolate takes centre stage-  fun, happy and safe for him. 
Easter Basket from Playschool


Popular posts from this blog

It's the most wonderful time of the year....

This is our sixth Christmas.
Our sixth Christmas since our son was born and diagnosed with Prader Willi Syndrome.

If you had asked me back then, how I thought Christmas would be now, I would have told you that we probably would have cancelled it. When we first got the diagnosis of PWS, all we could see was food..... food everywhere, at every turn, at every event, everywhere. How were we going to protect our son, keep him safe and enjoy an event that's filled with food?

And then we started to learn about some of the other complexities of PWS, the need for routine, the challenges of change, the importance of setting expectations and we were overwhelmed.

What we didn't know was how incredible our son would be.

Today The Lodger got his Christmas holidays (break!). His last week of school consisted of a topsy-turvy week of no homework, a change in the usual school day and a nativity play in which he played the role of an angel. 
How did he handle it all?

Without a hiccup.... well he wasn&…

Jingle bells... not until December!

The festive season is upon us once again.

The Lodger was banned from talking about Christmas until December 1st and it was purely selfish on our part in saving our sanity.  What we didn't expect was that The Lodger would take this new rule to the extreme.
If we were out and about in November, we would inevitably stumble across Christmas themed decorations. I don't think many children would stand there pointing at them and shaking their heads saying "O no, take it down. It's too early. Mum close your eyes. You'll be so cross if you see it!"
When Santa's grotto appeared in the local shopping centre, he was on his way to talk to the security man to tell him to remove it. If there were fines to be handed out for premature Christmas decorations, The Lodger would have made a fortune!! 
It was like walking around with a mini Grinch. Though, in all honesty, a mini Grinch who 100% loves Christmas. 

The 1st December could not come fast enough. 
"How many days are le…

Ugh Pancake Tuesday!

The Lodger makes me laugh, most days.  He has a really funny view of the world and an amazing way of just getting on with things. 
Yesterday he came out school telling me it’s Pancake Tuesday tomorrow in an excited how brilliant sort of way. 
He then stopped and said “What is Pancake Tuesday?”
A quick explanation and a reassurance that he will have a pancake for his special tummy and all was good.... well when I say good, I mean content but with a 1000 question follow up, repeatedly, throughout the afternoon and evening...... and the following morning.... but that's just how it is with The Lodger. 
"Mum will I have a pancake?" "Yum, I love pancakes!" "Mum , I'm going to love my pancake!" "Mum, does everyone know it's pancake Tuesday tomorrow?" "Mum, can you make pancakes?" "Mum, will you make the pancake after school tomorrow?" "Mum, pancakes are great." "Mum, when is Pancake Tuesday?" "M…