The Lodger makes me laugh, most days. He has a really funny view of the world and an amazing way of just getting on with things.
Yesterday he came out school telling me it’s Pancake Tuesday tomorrow in an excited how brilliant sort of way.
He then stopped and said “What is Pancake Tuesday?”
A quick explanation and a reassurance that he will have a pancake for his special tummy and all was good.... well when I say good, I mean content but with a 1000 question follow up, repeatedly, throughout the afternoon and evening...... and the following morning.... but that's just how it is with The Lodger.
"Mum will I have a pancake?"
"Yum, I love pancakes!"
"Mum , I'm going to love my pancake!"
"Mum, does everyone know it's pancake Tuesday tomorrow?"
"Mum, can you make pancakes?"
"Mum, will you make the pancake after school tomorrow?"
"Mum, pancakes are great."
"Mum, when is Pancake Tuesday?"
"Mum, it's tomorrow!!!"
and on and on and on and on and on and on..................................
Everyone he then met was told it was Pancake Tuesday tomorrow. He went to bed reminding me to find out how his auntie makes the pancakes that are ok for his tummy.
This morning, I woke to him singing a little song about Pancake Tuesday. We’re sharing a room until we move house, so usually, I wake to hear happy cheers of good morning mum, it’s going to be a great day!
He’s a morning person.... did you guess!?!
Back to today and I’m lying in bed listening to his song and thinking to myself, did he lie there all night thinking about Pancake Tuesday. Is it the same buzz he gets from Christmas? Easter? His birthday?
I didn’t know whether to be happy or sad. Since Diagnosis Day, I always thought Pancake Tuesday would cause so much stress, that we’d bypass it but then you’re here, in the moment and the stress you thought you’d have because of PWS isn’t as you’d imagined. It’s different. You also realise, that unless we live in on a desert island, we can't escape the world and its days of food celebration.
I texted my better half to let him know about the song and he replied with 'well in a way it's less harmless than skin picking' (current issue...there’ll be a blog post on it soon.) And he's right, it is harmless, the little song about pancakes but it also in a way breaks my heart in an unexplainable kind of way.
I’m waiting to collect him from school now and I know the first thing he’ll mention is Pancake Tuesday. The Lodger negotiated his terms yesterday.... a pancake for an afternoon snack because, in his words, it’s not a dinner thing. As my better half also pointed out, that's a win for us too. The Lodger concluding himself that the pancake would be an afternoon snack!
Food brings the Lodger joy, unimaginable joy. It’s hard to describe, it's even harder to understand but a day dedicated to pancakes in his world is brilliant. In mine it’s another nuisance, another thing to plan for! In a way, a sadness as a day about food brings him so much joy and excitement and you just want to get rid of all the food but know you can’t, that you need it and he definitely needs it.... food is fuel and for The Lodger the fuel is exciting!
So, as usual, we get on with it, we plan and prepare and answer 1000 questions and look forward to the day being over.
Here’s to Pancake Tuesday... a good day for The Lodger, a mixed feeling of a day for the mum!
O and of course, how could I forget...... in case you wondered..... yes he loved the pancake. It was made with eggs from the hens in the garden and a banana.
'Yummmmmmmmm, Delicious! I love pancake Tuesday. When is it on again?'
|Collecting the eggs with his Auntie.|
|The Lodger, the farmer.|