Skip to main content

Look how far YOU have come!


Sometimes we are all a little bit too Irish.

We just can't take a compliment. We look at our feet, shuffle uncomfortably hoping that the nice person would just go away and leave us to our lives. It's so Irish.

Recently the Lodger visited a neighbour with his grandmother (the Dodo - old extinct bird, her joke, not mine) and he had a great time. 


The Lodger having a go on the neighbours tractor!

Later that evening my wife received a text from that neighbour saying how she had the pleasure of entertaining the Lodger and that he was a breath of fresh air. So far nothing new to me, the Lodger is pretty amazing.
The next bit is the bit that caught my attention:

'While I appreciate there are many difficult times he really is a credit to his Mum and Dad.'

Firstly I read it and thought that's nice but I'm Irish so I don't really know how to take compliments but when I thought about it I realised that the Lodger is great because of us. 

And sometimes it's nice to just sit and reflect on that. We're not doing a bad job. With all the complications, stress and difficult times that go with the high paced lifestyle of PWS it's very easy to just forget how far you've come on your parental journey. And yes I am talking to all you parents out there looking at your feet and shuffling uncomfortably.

Sometimes it's just the right time to pat yourself on the back, close your eyes, and to reflect on what you have achieved. Yes our lives are hard and always will be but its sometimes worth just giving yourself a kind moment.

I recently got into triathlon but that's a story for another day. I learnt to swim just before Christmas, just over 4 months ago and this week swam 180 lengths over 3 sessions. That's 4500m. 4.5 kilometres! Something 4 months ago I couldn't even imagine. 
And yes, now, I took it all for granted. Because I'm Irish and that's another thing we do. We don't give ourselves enough credit.


The Lodger supporting me at my first triathlon! 


Until I read that message about the Lodger and it got me thinking that we should embrace our achievements no matter how small and no matter how insignificant too others. Because they are achievements and we deserve to celebrate them. Not take them for granted.

Achievements like all the tiny Lodger seeds we've planted and how those seeds have made our lives and the Lodger easier in just tiny little ways. Achievements the Lodger makes but wouldn't have if we as parents werent there to guide him. Achievements in all aspects of our lives as parents who didn't get to plan on a life like this.

So on this night of reflection and thought I suppose we need a moral.

The Lodger and I... Look how far we have come!

You should appreciate yourself for what you have achieved. The small steps, the little goals, the things that make your life easier in tiny little ways.

And you should enjoy the warmth of a heartfelt compliment and take it as it's meant because you just look silly staring at your shoes.




Comments

Popular posts from this blog

Turn around and go home.

Prader-Willi Syndrome. It raises its head when you least expect it. Although in hindsight it was totally going to appear because we did everything we weren't supposed to.  The Lodger and Little Bro walk in the woods (not today!) I'll set the scene. It's a lovely autumnal Sunday. The sun is shining, it's not raining and it's not cold. A walk would be just the ticket before The Lodger has his Sunday movie. As you know, routine is important. Movies can't be missed.  We decided on our route- the route we call the castle route. You guessed incorrectly, it doesn't feature a castle but if you go off path and really crane your neck you might just glimpse one.  However when we got to the woods, I switched the route up. I don't know why. I just did. A moment of spontaneity. Anyway Hindsight. Lesson learned.  The new route meant a bit of climbing, so a lot of helping The Lodger and for The Lodger he wasn't able to continue his telling of the story he paused las

Steak is my favourite animal.

By Rory The Lodger loves cows. They are his favourite animal. They are also his baby brothers favourite animal because the Lodger decided they are.  Cow watching! The Lodgers birthday was recently. A huge day in his and our life. 10 years into our journey of discovery and all the other things Prader-Willi Syndrome throws at you. He wanted the perfect birthday. Don't we all on our birthday. Unfortunately the Lodgers idea of the perfect day for our birthdays doesn't always live up to his high standards. Or what you'd actually like to do on your birthday. And this can lead to unhappiness with the plan.  Things have to happen certain ways. And sometimes for example if I had a glass of orange juice for my last birthday breakfast I obviously have to have one this year. And probably, every year. Routine is important. We created that monster ourselves. This year my birthday was surrounded by much sobbing and stress as when the cake didn't work first time (and I was OK with it,

Hunting Nuns

By Rory Today we went hunting nuns. It a past-time I hadn't expected to be partaking in when I woke up this morning but that's what was decided we would do so we did it. I should explain.  The Lodger loves witches. His favourite witch is the Grand High Witch.  While some years ago we worked through the logic that the Grand High Witch was not real we discussed actors.  Now obviously, his favourite actor is Angelica Huston.  She lives in America so we learnt everything about her.  We learnt she went to school in Ireland  In Kylemore Abbey.  We now visit Kylemore Abbey. Alot. The Lodger likes the house which was then the school.  He likes the bus to see the Connemara ponies and the Kune Kune pigs. I like the gardens.  We now go there to hunt nuns.  Unfortunately today we didn't catch any nuns but we did do some research. We investigated every picture of the nuns. We read all about the nuns. We looked in odd places in case a nun might be there. But there were none to catch. We