We recently had a breach of security.
Food security that is.
The Lodgers little cousin offered him some food and he accepted.
How do I know this? He told me.
The Lodger was watching some television and I went in to check on him.
'Mum, when is morning snack?'
'O, that's not for another hour or so Buddy.'
'Mum, Little Cousin gave me some food and I ate it.'
I paused and rapidly tried to remember what we've been advised to do in this situation. Remain calm, don't punish. Get the facts. Breathe! Count to ten.
'Ok, and what was it that little cousin gave you?'
'O it was a bit of one of my crackers. '
In my mind.. PHEW!
'Ok, well next time Little Cousin offers you some food, will you ask me first if it's ok?'
'I knew it was ok for my tummy.'
'I know you did but next time will you check with me?'
'Ok. Am I in trouble?'
'No, not one bit. Just remember that with your special tummy, you need to check with a grownup first. Little cousin doesn't understand about your special tummy yet.'
'Ok Mum. Mum, it was good. I can't wait for morning snack. '
I estimated that it was probably about 8 calories of a breach of security. 8 calories.
8 calories that I made an allowance for in his next meal. 8 calories.
Little Cousin saying Goodnight to The Lodger |
Currently, The Lodger isn't an active food seeker. I'd describe him as opportunistic. If he comes across something that he knows is ok for his special tummy, he'll probably eat it. In saying that though, we have an unsecured fruit bowl and no locks on the food cupboard. Although, toothpaste has to be kept on a high shelf.
The Lodger recently went to a friends pizza making birthday party. We do baking at home and he helps with meal preparation occasionally but I really didn't know how he'd get on. I needn't have worried, he just got on with it. The Lodger had negotiated his terms beforehand, so he knew he could have a sliver of pizza and a salad. He loved the process of the pizza making but in his mind, it was separate to the eating bit. Infact his favourite part of the party wasn't even the pizza, it was the dancing with his friends.
PWS is always surprising me. It is completely different from what I thought it would be when he was little.
Today The Lodger brought me home chocolate from school.
Fellow PWS parents don't panic, it was planned for.
A school friend brought in chocolate for the class, so I'd sent something in for The Lodger. However, The Lodger being The Lodger told his teacher that his Mum loves chocolate and he could bring home his bit for his Mum and have something different for his special tummy.
He was so delighted to be able to give me the chocolate, well he was after he got over the fact that I was wearing a different jacket and why was I wearing a different jacket and ok Mum, it is a warmer day but where is your other jacket and will you wear your other jacket tomorrow or will you wear this jacket, which jacket will you wear later on our walk, Mum, I didn't know you had so many jackets... and these aren't the shoes you were wearing in the morning....
'Mum you can have the chocolate at afternoon snack!'
A gift of chocolate from my son. These are words I never thought I'd write.
A perk of PWS parenting? Seeing the brighter side of Prader Willi Syndrome.
The Lodger, the gardener |
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