Skip to main content

Escape from Pancakeatraz!

I texted my husband today to let him know that today is my least favourite day of the year. He reminded me that I said the same thing last year, so it must be true.

I used to love Pancake Tuesday as a child. The excitement of having pancakes, a rare occurrence,  a special treat. I remember going back into school the next day and everyone sharing the number of pancakes they ate. I remember being introduced to vanilla ice-cream on pancakes by close family friends. A game-changer. Delicious.  Pancakes were joyful. Pancakes were something to look forward to. 

Notice the use of past tense, Pancake Tuesday is now a day I'd happily skip! 

As an aside, we can have pancakes on other random days throughout the year and it's a no stress event but this day, the Tuesday of the pancakes is a day that I could happily scratch off the calendar for eternity! 

Pancake Tuesday is very different in our home because of Prader Willi Syndrome.

The Lodger becomes fixated on pancakes. It's a day that has nothing else going on.

Halloween has fancy dress. Christmas has presents. Easter has the Easter PWS friendly hunt. 

Pancake Tuesday just has pancakes. There's nothing else for The Lodger to think about, so pancakes become the only thing to think about.  

It's a day I feel we are all trapped in a pancake nightmare. Pancake questions. Pancake talk. Pancakes. Pancakes. Pancakes! 

On high anxiety days, The Lodger wakes early and as predicted he woke early this morning all set for a highlighted day of his year.

'Mum, I'm making Happy Pancake Day cards!' 

'Mum, I'm going to do lots of pancake art this morning before school.' 

'Mum, Pancakes are the best things.' 

'Mum, don't forget the pancake,'

'Mum, did you make the mixture?

'Mum, where is it?'

'Mum, I'll just check the fridge'

'Mum, it's there!' 

'Mum, can't wait for the pancake later.'

'Mum, did you remember there is a pancake  for afternoon snack?'

'Mum did you make the school pancake?'

'Mum, don't forget my lunch for school and the pancake!'

'Mum, is the pancake in the bag?'

'Mum, this is the best day- a pancake day!'

'Mum, it's a two pancake day!'

'Mum, I'll see you later for the next pancake!'

For the first time, The Lodger is having a pancake in school with his friends. 

Of course there was a lengthy pro/con list made as to whether The Lodger should have a pancake in school but we decided that The Lodger will love it, joining his friends having a pancake just like them. 

Of course his pancake was sent in from home due to the portion controlled diet that he follows. Negotiations were made yesterday which he happily accepted. A half sandwich at lunch to allow for the pancake in school and a promise that he could have another pancake for afternoon snack, as its Pancake Tuesday at home too.

There are days we rock the boat but this was one day we allowed the boat to continue sailing. 

Due to his extraordinary memory, if we rocked the boat this year, he'd have heightened anxiety next year that we'd continue to rock the boat and on a food themed day, sometimes it's just easier to keep the boat afloat.

He'll have his afternoon snack pancake at approximately 3.30pm today. 

At 3.35pm, we'll escape Pancakeatraz and go swimming...... 




Comments

Popular posts from this blog

Turn around and go home.

Prader-Willi Syndrome. It raises its head when you least expect it. Although in hindsight it was totally going to appear because we did everything we weren't supposed to.  The Lodger and Little Bro walk in the woods (not today!) I'll set the scene. It's a lovely autumnal Sunday. The sun is shining, it's not raining and it's not cold. A walk would be just the ticket before The Lodger has his Sunday movie. As you know, routine is important. Movies can't be missed.  We decided on our route- the route we call the castle route. You guessed incorrectly, it doesn't feature a castle but if you go off path and really crane your neck you might just glimpse one.  However when we got to the woods, I switched the route up. I don't know why. I just did. A moment of spontaneity. Anyway Hindsight. Lesson learned.  The new route meant a bit of climbing, so a lot of helping The Lodger and for The Lodger he wasn't able to continue his telling of the story he paused las

Steak is my favourite animal.

By Rory The Lodger loves cows. They are his favourite animal. They are also his baby brothers favourite animal because the Lodger decided they are.  Cow watching! The Lodgers birthday was recently. A huge day in his and our life. 10 years into our journey of discovery and all the other things Prader-Willi Syndrome throws at you. He wanted the perfect birthday. Don't we all on our birthday. Unfortunately the Lodgers idea of the perfect day for our birthdays doesn't always live up to his high standards. Or what you'd actually like to do on your birthday. And this can lead to unhappiness with the plan.  Things have to happen certain ways. And sometimes for example if I had a glass of orange juice for my last birthday breakfast I obviously have to have one this year. And probably, every year. Routine is important. We created that monster ourselves. This year my birthday was surrounded by much sobbing and stress as when the cake didn't work first time (and I was OK with it,

Hunting Nuns

By Rory Today we went hunting nuns. It a past-time I hadn't expected to be partaking in when I woke up this morning but that's what was decided we would do so we did it. I should explain.  The Lodger loves witches. His favourite witch is the Grand High Witch.  While some years ago we worked through the logic that the Grand High Witch was not real we discussed actors.  Now obviously, his favourite actor is Angelica Huston.  She lives in America so we learnt everything about her.  We learnt she went to school in Ireland  In Kylemore Abbey.  We now visit Kylemore Abbey. Alot. The Lodger likes the house which was then the school.  He likes the bus to see the Connemara ponies and the Kune Kune pigs. I like the gardens.  We now go there to hunt nuns.  Unfortunately today we didn't catch any nuns but we did do some research. We investigated every picture of the nuns. We read all about the nuns. We looked in odd places in case a nun might be there. But there were none to catch. We