Skip to main content

Hunting Nuns

By Rory

Today we went hunting nuns.

It a past-time I hadn't expected to be partaking in when I woke up this morning but that's what was decided we would do so we did it.

I should explain. 
The Lodger loves witches.

His favourite witch is the Grand High Witch. 

While some years ago we worked through the logic that the Grand High Witch was not real we discussed actors. 
Now obviously, his favourite actor is Angelica Huston. 
She lives in America so we learnt everything about her. 
We learnt she went to school in Ireland 
In Kylemore Abbey. 
We now visit Kylemore Abbey. Alot.
The Lodger likes the house which was then the school. 
He likes the bus to see the Connemara ponies and the Kune Kune pigs. I like the gardens. 
We now go there to hunt nuns. 



Unfortunately today we didn't catch any nuns but we did do some research. We investigated every picture of the nuns. We read all about the nuns. We looked in odd places in case a nun might be there. But there were none to catch. We found the nun chamber. We assumed it was a place to keep nuns. There were no nuns. 

We found a nun enclosure. Definately somewhere where nuns would be kept. Like say a lion enclosure. But we decided like lions in the zoo when they don't come out they must be sleeping. Sleeping nuns hiding in enclosures. 





Obsessions in Prader Willi Syndrome are common. They can be anything and last varying amounts of time. Sometimes they can drive you mad when you just don't want to be told the entire Grand High Witch movie in spoken word line for line and then comparing it entirely to the Anne Hathaway version to measure differences and WHY WOULD THEY CHANGE A PERFECTLY GOOD ORIGINAL. 
Sometimes that is just too much. 

By the way we are not fans of the new version. No offence Anne Hathaway. We like the original but we still watch the new one and talk and compare it like an Oasis Blur never ending conversation from the 90s. 

Anyway, today to wind down from a long week at the International PWS Conference we went hunting nuns. And it was much more fun than trying to figure out which chair Angelica Huston sat on to have her breakfast for the billionth time. 
Some obsessions are just more fun. 
Like hunting nuns on a Tuesday in Connemara. 

Did Angelica Huston sit here?



Comments

Popular posts from this blog

To lock or not to lock, that is not the question anymore.

It’s approximately 4421days since we got The Lodgers diagnosis of Prader Willi Syndrome.   To save you doing the maths: twelve years and almost 2 months ago.  We’ve learned a lot in those twelve years- strategies to help distract him from food, tools to help transition from task to task, methods to help him calm down, strategies to keep us all going day to day….  We’ve met many experts in the field of PWS- from doctors, nurses, psychologists, researchers and a range of therapists from speech and language to occupational and physios.  We talk with many  PWS families- both with children older and younger than our boy, The Lodger.  I’ve often been asked if we lock our kitchen. Up until yesterday the answer was ‘not yet.’  Today I sat with him as I was helping him put on his socks. It’s still a tricky thing for him to do- even with all the helpful tips from occupational therapists over the years. Somedays he’ll do it easily, other days he needs h...

Turn around and go home.

Prader-Willi Syndrome. It raises its head when you least expect it. Although in hindsight it was totally going to appear because we did everything we weren't supposed to.  The Lodger and Little Bro walk in the woods (not today!) I'll set the scene. It's a lovely autumnal Sunday. The sun is shining, it's not raining and it's not cold. A walk would be just the ticket before The Lodger has his Sunday movie. As you know, routine is important. Movies can't be missed.  We decided on our route- the route we call the castle route. You guessed incorrectly, it doesn't feature a castle but if you go off path and really crane your neck you might just glimpse one.  However when we got to the woods, I switched the route up. I don't know why. I just did. A moment of spontaneity. Anyway Hindsight. Lesson learned.  The new route meant a bit of climbing, so a lot of helping The Lodger and for The Lodger he wasn't able to continue his telling of the story he paused ...

Water, milk….

This week we were driving along and Younger bro started listing food. “Apple, raisins , rice cakes” “Ugh” said The Lodger “Mummm make him stop. He’s making me think of food and it’s not time for food!” So, I had to ask my four year old son to not mention food to his big brother who has PWS, even if it’s food that’s ok for his special tummy. I explained we didn’t want to make The Lodger sad. That sometimes food chat can making The Lodger  emotional. Then The Lodger adds in ‘unless I talk to him about food first, then we can talk about it’.   ‘Is this because of the Prader Willi?’  said Younger Bro “Yes!” said The Lodger.  Being a sibling to someone with PWS is complex. There is always something new to navigate but at four years old he understands more than most people. “Water, Milk..” said Younger bro. “Mummmmm they’re things I drink with food. Tell him the rules again!” said an exasperated Lodger.  Younger bro is sharp.  I could see his cheeky knowing glanc...