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Water, milk….

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This week we were driving along and Younger bro started listing food. “Apple, raisins, rice cakes”


“Ugh” said The Lodger “Mummm make him stop. He’s making me think of food and it’s not time for food!”

So, I had to ask my four year old son to not mention food to his big brother who has PWS, even if it’s food that’s ok for his special tummy. I explained we didn’t want to make The Lodger sad. That sometimes food chat can making The Lodger  emotional.

Then The Lodger adds in ‘unless I talk to him about food first, then we can talk about it’.  

‘Is this because of the Prader Willi?’  said Younger Bro

“Yes!” said The Lodger. 

Being a sibling to someone with PWS is complex. There is always something new to navigate but at four years old he understands more than most people.

“Water, Milk..” said Younger bro.

“Mummmmm they’re things I drink with food. Tell him the rules again!” said an exasperated Lodger. 

Younger bro is sharp.  I could see his cheeky knowing glance in the mirror. He knew what he was doing. He doesn’t miss a trick. 

“Not food!” said Younger bro, “The rule was food!” He was grinning his knowing smile! 

As I said, PWS is complex, being a sibling to someone with PWS is complex but this boy gets it. He adds in a random Lodger test everynow and then, a little sibling nudge to see how far he can push it.  

And then he’ll agree, agree to the not in every household rules we have in place because of PWS. 

“Mum!”, said The Lodger “I think he’s the best brother in the whole universe! He hasn’t mentioned food or things I drink with food all the way home. He knows mum, he knows.” 

I look in the mirror and Younger bro is grinning. 
“We are the best brothers in the universe!” 

#thelodgerandus 



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