The Lodger and Us

The Lodger started preschool in the last few weeks. We found a preschool that have accepted him without a preschool assistant, a battle we continue to fight, trident in hand we fight on. Anyway all he needed was a thermos lunch bag. So simple and yet these were the thoughts going through my head a few days before he set off. I discuss with the Lodger where we should shop for his lunch bag and because it's a Wednesday and because it's just after lunch he's in a YES mood so my decisions are all agreeable. This is a good day. We arrive in the shop and I survey the options. He loves Frozen but I don't so I veto that. He understands. Daddies know best. He loves monsters too but it's all monsters crossed with lunches, so monsters eating and I'm not sure about how Pradar-Willi friendly that is. Then there's the happy strawberry bag with the lovely strawberry zips but I wonder if I buy that one will his teachers believe how serious PWS is if we're so c...

I recently read a blog about what we can learn from people with Prader Willi syndrome and it got me thinking. I started to think about the good things of PWS. The benefits of PWS. The things that make me feel good about The Lodgers development. Possibly just my benefits of PWS but I thought I'd share them anyway. This may seem strange. How can you see benefits to a rare and so far incurable syndrome? Well I do and I'm sticking with it. So here's my Top 5 benefits of Prader Willi Syndrome . No 1. Slooooow motion The Lodger is 2 and he is growing so slowly. It's brilliant. He's been nearly walking for 6 months and he was nearly crawling for a year before that. Before that he was nearly rolling for ages. We never miss anything the lodger does as it takes him so long to do it. And I enjoy every day of that wait. The tiny changes. The growing confidence. The mental strength in his little face and he pulls up to peer out the window at the cat in t...