The Lodger and Us

'Mum, I'm so sad for Jesus having a Last Supper! It is the saddest thing ever. It's horrible. Nobody should have a last supper!' 'Don't worry about the Last Supper' 'How can I not worry. Will I have a Last Supper?' 'No' 'How do you know?' 'It's something you don't need to even think about.' 'I am thinking about it' 'Well why don't you go for a nice sleep and dream of pirates' 'Which pirate?' 'Hook?' 'Ok, Hook is the best pirate. Did Hook have a last supper?' 'No!' 'Are you sure?' 'Yes!' 'I'm so sad about the last supper!' 'Ok.' 'Mum, how can there be Christmas if Jesus is dead?' 'I really think you should sleep now!' 'Mum, I'm not one bit happy about this!' 'I know you're not but how about, you can go for your sleep and forget about it all while you're sl...

Hopefully is our word of the moment. Every time we plan something, I follow it up with 'but plans can change, hopefully, it will be plan A but sometimes we have to move to a different plan'.  It's become so ingrained in our everyday life now that I don't really even take notice.  The Lodger for his first five years had a very convenient bus/train network at our old house. Granted, things could run late but they were plentiful and always had space for everyone. Last weekend, the Sunday plan was to get the Galway bus into Galway city to meet Dad after work.  Hopefully, the bus will come.  Hopefully, there'll be space for us on the bus. Mum and Dad have a plan B, incase.  Hopefully, the bus will come.  Mum, why are we saying hopefully? Ok Mum, hopefully.  As I stood with The Lodger, at the spot where I thought the bus would stop but couldn't fully confirm it with The Lodger who expected a bus stop sign, I had an inkling of what it was...

A few years ago we went to a Living Better with PWS workshop. I still take out my covered in scribbled notes guide from the workshop as it is full of hints, advice and information from other parents of kids with PWS. Our mentors! There is nobody who understands PWS better than other parents. Granted, their child might have different symptoms or the same symptoms with varying degrees of severity, different strategies for dealing with the array of challenges but from each parent I have met, I have gained knowledge. (Thank you!) As the Lodger has gotten older and new challenges arrive, the guide has proven invaluable. My old reliable car has proven not so reliable and has reached the end of it's days. Not bad for '98 vehicle. This, for The Lodger, could have been traumatic, except for the fact I had planted the seed a few months ago. We were driving home one day and we got on to the subject of old things and how sometimes we need to replace ...