The Lodger and Us

The Lodger has learned the days of the week.  Brilliant.  Did you read that with an underlying sarcastic tone?  Honestly, it is fantastic that The Lodger has learned the days of the week, it's another milestone in the never-ending list of things society deems goals to achieve. However, because of this new skill, we can't be as direct with future plans. An answer with the day of the week before meant nothing but now it's a different story.  I accidentally answered his question of when Halloween is on with the day of the week. I'll blame it on being slighted distracted.  So, in the run-up to Wednesday, The Lodger did his new skill of saying what day it is and following it with the future days. This just sounds like an excited kid. Correct but also wrong because when you mix PWS in, you get excitement and anxiety.  The plan was put in place. Incase you think we sit up at night, with paper and pens and whatever else you ne...

If CPAP was Ironman, The Lodger would be the winner! That's the quote of the day. I think we better get it printed on a t-shirt.  The Lodger, Champion of CPAP 2018 For those without knowledge of Ironman, it's an endurance event that the better half took part in last weekend. This year was the Ironman 70.3, a 1.9km swim, 90km cycle and a half marathon, all to be completed within a time limit. The Lodger and I were the Ironman Support Crew. In the Lodgers words, our job was to 'Cheer on Dad and see his medal at the end!'. Two boxes ticked and to quote The Lodger " Well done Dad!" Ironman Success We had many celebrations this summer. A New house, a family wedding, birthdays, triathlons, Ironman... but in the world of living with PWS, we have some PWS celebrations too. Obviously, being a champion of CPAP (For those without knowledge of CPAP click here ) is now close to the top of the list, possibly even knocking down the Ironman medal f...

Once we heard that The Lodger had Prader Willi Syndrome, we very quickly and drastically changed our lifestyle and one of the hobbies I once enjoyed, I felt I could never do again. I loved baking. I was a big fan of cupcake design and when I was pregnant I looked forward to baking for future birthday parties for my child. On hearing The Lodger has Prader-Willi Syndrome, I packed up all the baking books and put them away. How could I bake, when my little boy would never get to enjoy the creations or lick the bowl which myself and my sisters enjoyed so much as we grew up.  I was very hesitant about introducing baking to The Lodger. I was thinking about it all morning before I made the final decision, weighing up the good and bad. Would it be a disaster? Would it increase his anxiety? Would he able to resist having a taste? When he's older, will it cause stress?  I got everything ready, the bowls, the aprons, the weighing scales, the ingredients and the spoons......