The Lodger and Us

The Lodger brought me out for lunch today, paying with his own card but my money on it.. but we'll let the illusion continue as he thought he was the bees knees. And rightly so. I think he is. As we chatted over lunch, a delicious soup, possibly the best soup he has ever had but if you live in our world you'll know that most meals for The Lodger are rated 10/10. If he knocks you points, I'd really be questioning your cooking skills.  We talked about the highlights of the summer. Staying on a dairy farm, school summer camp, horse camp, staying in the PWS holiday house, minding his grandparents house and animals, our family holiday, getting the new kittens, seeing people,  having a nice time at home..  'O and Mum, don't forget the delicious meals!'. Phew, no need to question my cooking skills.  And then we got to the 'not the highlights!' 'Well there's only one of those', he says, 'That Maze!!' On a nice day in August, I decided wouldn...

It’s approximately 4421days since we got The Lodgers diagnosis of Prader Willi Syndrome.   To save you doing the maths: twelve years and almost 2 months ago.  We’ve learned a lot in those twelve years- strategies to help distract him from food, tools to help transition from task to task, methods to help him calm down, strategies to keep us all going day to day….  We’ve met many experts in the field of PWS- from doctors, nurses, psychologists, researchers and a range of therapists from speech and language to occupational and physios.  We talk with many  PWS families- both with children older and younger than our boy, The Lodger.  I’ve often been asked if we lock our kitchen. Up until yesterday the answer was ‘not yet.’  Today I sat with him as I was helping him put on his socks. It’s still a tricky thing for him to do- even with all the helpful tips from occupational therapists over the years. Somedays he’ll do it easily, other days he needs h...